"Benign Neonatal Hemangiomatosis"

Our sweet baby Chloe has "Benign Neonatal Hemangiomatosis." What is that?? Have you heard of Hemangiomas? Sometimes they are called a strawberry birthmark. 1 in 50 caucasion babys have 1. Well, Chloe has over 65 spots. Her's have started out teeny tiny red spots. The first year they will continue to grow. Then by age 7 -9 they should be gone. That sounds okay?? But there is another issue. They can also form in organs, mainly the liver. After going to two Drs they don't believe she has them in her organs. If they are in the organs mortality rates are high. One Dr did say of a baby that had them in two organs, she did cemo, and is cured now. We are praying that they will never form in her organs and that we will only have to deal with them on her skin. I will take her to the Dr every month to be examined. If they are in the organs Drs would hear a heart murmur, they would feel her organs swollen and she wouldn't be growing and gaining weight like normal. If you look closely at the picture above you can see the largest one she has on her chin. We are very grateful for those who have already been praying for her, fasted and put her name in the temple. We are very optimistic that all will be well. I can't just sit around and cry and wait. Life goes on and I am enjoying every second with my sweet baby.